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Post by Artista/CN on Sept 1, 2021 14:49:28 GMT
Fuck PLS. This disease has my dad needing assistance with everything. His right arm and leg are ever so slowly becoming affected too. His speech is very gravely and sometimes hard to understand. It's going. Beyond heart broken, absolutely devastated. There is a caregiver who helps 3 days a week so bro can get back home but as always, who knows how long she'll stay. Poor bro. Very exhausting situation. 😭💔
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Post by Artista/CN on Sept 2, 2021 17:07:26 GMT
RIP gocolts, Gary Lance. Thank you for being a great friend and huge support during my cancer years. I'm so sorry that you couldn't overcome your demons. May you rip with your mom and dad. 💔😢❤
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Post by Artista/CN on Nov 16, 2021 6:16:13 GMT
Depressing life. Stress and anguish taking a toll. Pops continues to decline. Right arm/hand not functioning too well.His writing is bad and typing with 1 finger isn't easy. The latest is it's gotten to his vocal cords now. Many people with PLS lose their voice too as the disease hits all voluntary muscles. Hard to understand him, sometimes loud whisper. Says over and over wants to die. Being in bed or a recliner with difficulty 24/7 is no life. Absolutely crushing this slow progressive disease.
Then there's bro there 24/7 caregiving and doing everything household by himself. While very loving and kind, his mind is struggling to hand the mental and emotional stress. He has 0 life. Every caregiver we've had was a headache and eventually moved on. Especially during covid and how people don't want jobs yet. Slimmer pickings. Pops has dead weight due to his left side paralysis so he's heavy. Bros 6' 2" height enables him to lift properly without damaging his back. And on top he has high anxiety all his life and repeats stuff, complains a lot, etc. Bro has a rough time dealing with it. I know I always have. Everything is 911. So yeah, another reason they don't last. Possible injury and difficult personality with his high anxiety. Bro is out more than 2 hours shopping I get calls. Pop is worried. Bro not answering phone and is late. Omg he's fine. Just maddening.
Plan is to get through the holidays. Assisted living is out as they are all shit unless you pay 10k a month. Plus pop wouldn't survive it. Extremely depressing on top of his depression and anxiety. He has full cognition and would lose it, calling bro or me 100 x a day with issues. So no way for all of our sakes.
Just so crushing. My bro is there 24/7 no breaks. Can't imagine. 😢💔
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