|
Post by Artista/CN on Aug 2, 2020 0:07:04 GMT
So I weighed Bianka. Last Sat, 318 gm. Today, 290 gm. Should be gaining not losing. She's eating normal, very active, does happy squeaks, drinks fine. Puzzled. Set up a new gp appt with my exotic who is Bellas as well as was Mooshys. Aug 20. I'll be weighing her daily every am till then. If on downward slide then will be worked in sooner. Dr. Welsh has a partner now who is also gp savvy but Aug 20 is soonest. Plus I want to stay with Dr. Welsh. All my gps have seen her and my birds had seen her husband. Love these exotic vets.
My thoughts. She's not ill. She has a large pen that she is running around and jumping at least twice a day. She went from being fed by mother in a small area to lots of activity here. I ran it by my buddies on guineapigcages.com of course worried but this is likely..
|
|
|
Post by Artista/CN on Aug 3, 2020 3:01:22 GMT
She's looking good. Weighed in fine. Even if she looks great will still take her for new pt visit.
I'm feeling better. Bits of fibroids are coming out. Looks like a really dark pink to very light red clot but it's not a blood clot. Don't think the cramps will get to 0 with my meds, but we'll see. It's nice to sit up more.
|
|
|
Post by Artista/CN on Aug 3, 2020 22:35:17 GMT
No sign of apt lease until today. They tape it to the door. No change. 1925 for my 1 bdr 630 sq ft. Then a few hours later manager calls and says they decided 1 bdr to be 1895. I'll take it. Not planning on moving unless must financially. Last time rent went down here was 09 or 10 by 100. Have no idea if rent could go higher with a covid vaccine being out next year so doing 12 mo lease in case.
|
|
|
Post by Artista/CN on Aug 4, 2020 23:37:22 GMT
Brain fog day in action. 9 am labs at infusion center. Forgot to put elma cream over port to numb area. Ouch. Then Dugoni at 930. Love this good looking surgeon. On Aug 6 I'll be 5 years out from bilateral mastectomies. Since he didn't feel anything suspicious I have graduated to once a year checks with him. He had reviewed my chart before coming in and asked how the uterine embolization went. Said seems to help.
Then to the store. Come out, digging for my keys. Wtf??? It's in the ignition! Fuck me brain. I sometimes forget to carry my phone. Thankfully I had it. During covid I dontwant to try asking someone to borrow their phone. Called aaa. Got there in 20 min. When it's nice out I always keep front 2 windows down a bit for air circulation. In 1 minute he unlocked the door. Nice dude. Off he went.
Tomorrow pcp to call me. Then it goes for 2 weeks for MRI on my uterus to see if those monsters are all slowly dying off..
|
|
|
Post by Artista/CN on Aug 5, 2020 17:19:11 GMT
So pcp called for my appt. Same ole stuff. Told her since beginning of year have involuntarily jerks of limbs from time to time, sometimes twitching or trembling, spasms.. not daily but enough to concern me. Just lasts a couple seconds or so when happens. The jaw dropping open on it's own a couple times was the weirdest scariest thing. Told her about pop with primary lateral sclerosis. So she's setting me up for a brain mri. Also wants u/s on gall bladder to see how it looks now with a 2 cm stone in it. No symptoms but wants to stay ahead of shit. Need to go in after brain mri appt.
Also with my history and age, each year now I have to do a polst. This was over the phone of course. If I fall unconscious should everything be done to revive me. Ok. Intubation: no, short while try, long term. Short while try. Feeding tube: no, short try, long term. Short try. So this is in my file for a year when we review it again.
|
|
|
Post by Artista/CN on Aug 6, 2020 17:22:17 GMT
8/6/15 was a Thursday. Exactly 5 years ago I was in a 5 hour surgery to remove both breasts and place tissue expanders to keep the skin stretched for future implants while I went through chemo and radiation. My left had a 7 cm tumour at the highest diameter. Bro had snuck up to be here for a few days since no fam knows. I remember waking in a private spacious room. Bro was there as was my buddy Anna. I couldn't see my chest as it was completely bandaged. I had 4 drains in, 2 on each side. The nurse came in and showed Anna and bro how to empty the drains. They are both faint at heart with bodily fluids but they were troopers, sucked it up! I was released on that Sat. The start of the new me. What a journey it was with complications. Dugoni tells his assistant when examining me that I didn't have an easy go with infections, pneumonia and lung collapses. But after bro left 4 days after my sx, I was on my own. Have been for all 8 sxs/procedures over the past 5 years. I have taken care of everything I had so as of now, no sxs in sight. But the multiple doc visits remain for life. I'd say I'm pretty used to having my pecs tightly hold my implants in place. But I don't really get used to the numbness, especially when there's the itch you can't take care of. The numbness is bilateral on under arms as well. Weird not feeling a thing when shaving!
|
|
|
Post by Artista/CN on Aug 7, 2020 0:47:18 GMT
Not a walmart shopper at all but got a tip clorox wipes are in stock... Small canisters 35 ct only, but no limit! Came out with 18! That is the equivalent of 2 4 packs of 75 ct. I don't use them as I use liquid bleach but pop does. So it's stashed for them. Not surprised mom has 2 boxes. She's always on the ball and well prepared..
|
|
|
Post by Artista/CN on Aug 11, 2020 0:49:10 GMT
OMG trying to get a hold of schedulers. Spent all morning trying to schedule the mri of my brain and ultrasound of my gall bladder. 2 different imaging places but next door to each other. Voice mail. Then a human but has 3 calls ahead of me. I have minimal patience these days. Spending the entire am trying to get a human, and if I do, not to be on hold forever tested how truly impatient I am. Finally get through to the ultrasound place. Wed 8 am appt, fast 6 hours prior and no carbonated drinks 24 hours prior. Glad it's not the drink 32 oz by 1 hour prior and hold. I've had so many u/s I forget what the protocol is for them all. And finally got through to mri. Pcp hasn't sent order yet. And isn't in today. Of course...
|
|
|
Post by Artista/CN on Aug 12, 2020 0:55:17 GMT
Heat wave coming so made all my appts for early am. Tomorrow is u/s of gall bladder. There is a 2 cm stone in there. Pcp wants to see it's position and if any more since occasionally pain there. Thurs is brain mri. Last night again my jaw involuntarily dropped open. Weird and scary shit.
Pop's tues thru fri caregiver was out last week with a bad back from moving something heavy. Bro said the evening help is focusing on nursing school so the mother in law goes to do the night catheter placement. She thought of a lady who may want to help. Pop and bro met her fri. Bro said needs to talk to her husband and would let them know mon. I hope that bro's been too busy to respond yes she'll cover for when liza can't. Bro pretty much has accepted he's the caregiver with help at times. He's let go of his ambitions and is viewing this as his calling. It doesn't change that he's not the caregiver type but if he remains upset and angry, it makes it harder on him. He said dad is a little more accepting of his condition and less negative which helps too. I feel so bad for both of them. I hope that lady can be a backup.
|
|
|
Post by Artista/CN on Aug 12, 2020 23:52:11 GMT
So it wasn't just a gall bladder u/s but liver, kidneys, spleen as well. Lots of deep breath in, hold...short breath in, hold. Actually was painful at times as she pressed hard. See pcp next Thurs but results should be posted before then. Tomorrow mri of brain 730 am.
As I was checking in one of the nurse navigators was passing by. Laura. She wasn't my navigator but I used to attend bc support groups so we know each other. Told her all that's up. With covid she does zoom support group now. I'm on the email list. Haven't participated in a few years now. I told her before I like to receive the emails in case I do want to join in. The thing is I'm afraid my vent would be about how it sucks major ass for pops. I'm fine with my fate, good or bad. But pops is heartbreaking. So I don't plan on rejoining that group unless I progress. I give a lot of support and advice on breastcancer.org so I am helping folks there.
|
|
|
Post by Artista/CN on Aug 13, 2020 19:07:58 GMT
And brain mri done. It was with contrast and she had a hell of a time finding a vein. Gal said oh you're back. Yup, and see you next week!
Nothing until next thurs double deckers of pcp visit then mri of uterus. Not looking forward to heat wave coming. Did all shopping so I'm in till appts next week.
Today a lady is at pop's with bro to spend day to see if she wants to be backup to liza. Or if at least she'll do the catheter at night when liza not there. Otherwise bro gives a towel for him to pee in for middle of the night. They did it already and it worked. Bro is a saint. No kid of any age would go this long committted to keep going as pop's caregiver. It would be a home by now. I don't feel I have a say either way. I'm not there helping with caregiving so I don't feel I have a say. I'm fine with it. If they ask me fine but so far I just get the latest news. They ask me to research stuff or help find something..
|
|
|
Post by Artista/CN on Aug 15, 2020 4:13:13 GMT
Abdominal u/s posted. Too many long words, don't know what it means. The only thing I caught on is gallstone at least one that is mobile. Not a good thing. It could get stuck in the bile duct. After reading this decided to just wait for pcp to go over the results. Brain mri not posted yet. Even though it's not really considered often on getting various scans, it feels like it. I know so many staff and they know me. A good and bad thing.
Hotter than hell here. Thankful for my portable ac. I don't know how people do it with just fans on such days. I have to watch bella and bianka. Guinea pigs are prone to heat stroke. So the freezer is full of ice packs to put under a fabric for them to lay on. Also am rotating water bottles so they have it cold most of the time. I hate the heat more than anything. One week of 90s seems to be the forecast here. 😩
|
|
|
Post by Artista/CN on Aug 16, 2020 2:23:42 GMT
Even hotter mon and tues. No real relief in the 5 day forecast. This year has been odd. Feb our "coldest" month was warm, some days I had ac on and I'm not one to just run it. June had some hot days. July was normal, not hot. Aug is odd. This 1 week of 100 F is not typical, especially the duration. Sept and Oct are the worst here. I just bought a floor fan with a USB port to have a fan at least if power goes.
|
|
|
Post by Artista/CN on Aug 16, 2020 17:42:51 GMT
Great 3 am flash lightening show. Watched the sky light up, a gorg backdrop to the trees. Thunder and rain too so it feels like Florida today. Ugh!
|
|
|
Post by Artista/CN on Aug 19, 2020 1:07:24 GMT
While this thread is done, I have a new one with an accurate title. Follow my blog here if you wish. Some about me but like the bc journey thread, most about health stuff...specifically neuromuscular diseases like primary lateral sclerosis that my dad has, etc. The enormous amount of work it takes to just get my dad through the day with the basic activities of daily living. nomoregfiafp.boards.net/thread/1167/artista-cn-life
|
|