|
|
Post by Artista/CN on Aug 18, 2020 1:29:50 GMT
160 pages is enough for a thread, especially since I can't edit the title. I've been out of all cancer txs for over 4 years now. Now it's scans as needed and anti hormonal meds for my ER+ cancer to hopefully reduce chances of progression. Some idiot who knows 0 on the shitty board says I've been on chemo for years. Lol. Fucking stupid. Only stage 4 are on a chemo routine for life. I no longer care what people think. I've got enough worry for my pop and poor bro the caregiver. And this heat! Thankfully no blackouts here so far!
|
|
|
|
Post by Artista/CN on Aug 18, 2020 5:24:58 GMT
Um. What kind of a test result is this with no results.. Attachments:
|
|
|
|
Post by Artista/CN on Aug 19, 2020 8:48:51 GMT
There is now at least one major fire burning in every Bay Area county except for San Francisco itself. Had bathroom window open and woke up to strong smoke smell. ðŸ¤ðŸ”¥
|
|
|
|
Post by Artista/CN on Aug 19, 2020 15:38:04 GMT
Woke up to shocking news. My cousin passed away suddenly. I can't believe it. Hospital said she called 911. Can't breathe. Ambulance gets there but too late. Just goes to show that life is unpredictable and short. So sad. 😢
|
|
|
|
Post by Artista/CN on Aug 19, 2020 19:28:16 GMT
Gavin Newsom
@gavinnewsom
CA has experienced 10,849 lightening strikes in the last 72 hours and WORLD RECORD heat temperatures. We’re currently battling 367 known fires. Grateful for our firefighters, first responders, and everyone on the frontlines protecting Californians during this time.
|
|
|
|
Post by Artista/CN on Aug 21, 2020 5:08:58 GMT
Pcp at 9. Strong soot smell but a little cooler. Brain mri didn't detect anything. Unable to explain periodic jerk movements so got a referal to a neurologist. Liver enzymes are a little high. Do have gallstones largest 3 cm. Probably from years of shitty diet. There are no effective medicines to shrink or dissolve gallstones. So if or until it gets painful, no gallbladder removal. Will be doing labs and seeinghpcp again in 3 mo.
Killed time in the shade in my care until 1045 mri of the uterus appt. I'm a frequent hospital visitor. Everyone knows me now. It was with contrast. Ugh. IV. Finding a vein. Always a painful task. Last week's brain mri was an injection of contrast. Man am I glad I kept my port with all the labs I do. At least that isn't painful as I numb it down 2 hours before with elma cream. After they called Dr. Lin office. They took me to their clinic. Dr. Lin did my uterine embolization sx 5 weeks ago. Very nice and caring like my cardiologist, both go into details. Brought up my before mri which was lit up. Today the fibroids are dying off! Haven't had spotting or bleeding in 2 weeks. As for cramps says it's uterus shrinking and will be for awhile. Ugh. Follow up mri in 6 mo.
Not sure yet when neurologist appt will be. If it's not this month then I'm done with medical stuff for the month!
|
|
|
|
Post by Artista/CN on Aug 24, 2020 0:08:10 GMT
The fires in the bay area are epic. The haze is so bad it looks like a storm is coming. Air quality bounces from very unhealthy to unhealthy. Mission hills are on evacuation warning. I'm about 10 15 miles from the northern border on the map. Have a dull headaches. Just gloomy out, the bit of smell that gets in here, no fresh air for days makes me feel ill. 😷
|
|
|
|
Post by Artista/CN on Aug 24, 2020 23:14:51 GMT
The red alerts have been canceled! Still told to be weather wary but that's the speel in sept and oct. I wasn't sure where I'd go and how to deal with 2 guinea pigs who aren't buddies yet. You can't keep them in carriers or let them run loose in a room. Wasn't even packed. Just kind of froze when the warning zone was not far.
Pops new chiropractor seems good actually. Looked at his xrays and he's all out of alignment. He may have a serious fx from his big fall in 2018 so going to get mri. He worked on him and pop felt a little better. Bro says not as hunched. Marlon pop's PT and now friend too went with them. He was impressed and he's not easily impressed. On elderly most don't bother. His previous dude didn't do shit. This guy is doing what he can and not thinking meh, guy is 80 yo. Unfortunately that's how much of the medical professionals think. What's the point. Makes me sad and so angry!
|
|
|
|
Post by Artista/CN on Aug 26, 2020 22:57:14 GMT
It was nice to finally have moderate air quality yesterday after days of bad air. Opened all windows.
Anna's moving her mother to sac end of sept. Cheaper and nicer facility. She doesn't visit often and will probably visit less once mother is there. Oh well,such is life.
|
|
|
|
Post by Artista/CN on Aug 28, 2020 23:46:49 GMT
Went to an ENT today about throat clearing. Stuck the camera in my nose. Wants to try my drinking a lot of water each day. Says mucous is sticky and may solve it. Oct 2 I go back and if not better then will rx omeprazole for am and a prilosec at night. No procedures so that's good.
Liza is going to Seattle for a week. Told bro when come back will talk hours. So bro is on till a week from monday on pop duty. I told him if it's crazy cut then look for a tonga caregiver seni talked about for live in. We can't have pop put to bed at a crazy early hour. I told him since he doesn't want his bedroom in the living room to get a small flat tv to put in the dining room so he has a choice to watch. Pop always says no so we'll see. Hopefully it won't be a major change but she does have a 3 yo her husband watches. She's been with pops since jan.
|
|
|
|
Post by Artista/CN on Sept 2, 2020 2:09:54 GMT
Phone call 8 am. Thought bad news from someone. Was Anna. Picked up and i said she cancelled. Yup tara always has something come up that appts are always cancelled. Maddening. So after calling found a little place that took both of us. She cut hair outdoors. Always scared with new hair stylist. She did great job. Took her time. So we plan on going together there for hair. Tara was good but getting a hold of her was difficult then she'd usually cancel. We think she really doesn't want to do hair anymore.
Before that when anna came, went to give benji dog to anibal. He looks worse. His left eye he never took care of after surgery was bloodshot end of June. Today it's half shut and like whitish gray. It had exploded pus and it's now completely blind. He's bonier and really hunched. His color isn't good. Just when you think he can't look worse, he does. Then to bronco billys pizza.
Then went to visit mother thru a window screen. Anna had bought her tons of personal care stuff and foods she likes. I have never seen her not say a bad thing to anna, raise her voice.. I mean she was very nice. Knew both of us. We were wearing masks. She said i have beautiful eyes. Said she loves both of us a few times blowing kisses. Isn't getting why we can't go in. Wanted us to go to her room, give us hugs. Very tough for dementia person. Walking to the car anna cried hard. I said aging parents suck ass. Having my meltdown moments with my pop.
Then haircut. Then Safeway. I've never seen anna care so much about anibal. All her anger from his lies, stealing, everything, was gone. Now it's I'm so sad for him. She spent over $100 on food for him that should keep in his car. I had told her before not to be so tight with him. No way will he live long enough to go through his portion of the estate. If he says wants a little more, just give it to him. Think of it this way. The drugs are for physical pain too. She got my message and I think that's why this time she gave him more and instead of 2 bags of groceries, it was 4 full ones. It was like he won the lottery. Bringing me home she kept commenting on how bad his situation is, feels sorry for him, etc. Normally it's me trying to point this out and telling her don't be so hard on him and how he can't do anything on his own. Mother's fault. Now for the first time it sunk in and the resentment and the anger is gone. He really looks like he's not going to last long. Mother looks 1000% better than him.
Anna's moving mother to sac. Next thurs doc appt since new place requires updated med info. I'll go withethem. Probably last time I'll see mother. Probably last time anibal will too. Will be rough on mother because no way anibal would even take the train to sac. Mother always asks for him as it's her fav kid and he does visit sometimes through the screen. Dementia people get really stressed when things change. So next thurs she'll l ask her doc if she thinks its ok to move her, ie, no more seeing fav kid. And anibal is a 0 with technology. Can't even do email let alone video chat.
|
|
|
|
Post by Artista/CN on Sept 3, 2020 18:05:18 GMT
Comcrap fucking sucks! I accidentally pulled the plug from the outlet to the hd box and plugged it back in. Can't get me back on remotely so coming at 3. This happened yesterday! Thankfully youtube is working.
|
|
|
|
Post by Artista/CN on Sept 7, 2020 23:34:17 GMT
Damn hot here. 105 at 3 pm. I'm not in an area where rolling blackouts happen. That's up in north bay mostly. I don't know how people without ac do it. Fans don't do anything but blow whatever the temperature air is. They don't cool. Only ac does. Still unhealthy air here. We've broken the record on # days in a row for this. Countdown to nov. Used to love sept and oct but climate has changed here.
Bro is beat. Liza is back from a week in Seattle but the night before she went to a party so no coming over to put catheter on pop. So bro was up every 2 hours with the urinal. Last night was diapers. Bro was so beat from lack of sleep that no walking pop upstairs for weekly shower. Rei has wipes for camping that does a great job. Pop felt good afterwards.
Today his sister visits. Then liza should be coming to put catheter on. They will also talk. Bro had to pass on 2 full semester sub jobs. Needs a committed caregiver so can get back to work and his life on weekdays or min tues thru fri. He says liza has become somewhat lazy. If it really is her back then she shouldn't do caregiving. Marlon says he knows someone who could help with a search. So hopefully tonight we'll know if liza is in or out. Maybe she could be a backup for when new caregiver can't make it or at least for putting catheter on. Never burn bridges. Bro is way too kind personality. I'd be the one having to stifle if I felt someone is messing with us. I'm very kind and caring but mess with my loved ones and my wrath will be unveiled to some degree.
On Sunday Anna's mother was admitted to the hospital. Aspirational pneumonia. Just saw her last tues looking better than I can remember and fully dialed in. Just shows you never know. Mother's always pulled through since 2015 when we were on and off this is it, but at sime point we go. Cherish your loved ones, especially your elders..
|
|
|
|
Post by Artista/CN on Sept 10, 2020 5:06:10 GMT
Wow what a sky ablaze... orange skies all day and dark. Very eerie. At least it's cooled down. Looks like the aftermath of a nuclear bomb went off. 2020 continues..
Liza can't commit to the schedule. She can help here and there but wants to spend more time with her 3 yo. No prob. Just no more caregivers with kids at home. Bro is burned out. Lot of work and stress along with watching pop struggle so. My tears never dry up. Not many things can distract me anymore. My 2 guinea pigs are about it.
Today bro contacted his second choice from last year, called him right away. Filipino girl who really wanted the job and was a good candidate, but he liked Seni a little more so he chose her. She is working for an agency but she wants to see if she can rearrange her schedule so she can do Tues and Thurs and then see if she can get one of her colleagues for Wed and Fri. So she said give her till next week to figure things out. Of course she would have to meet pop along with her friend. If nothing is happening by next week, then he will post the job on and start interviewing. Too bad we don't have a career caregiver in the fam. They'd be more likely to be in for the long haul if you are close knit fam. Poor bro. 2.5 years and counting..
|
|
|
|
Post by Artista/CN on Sept 12, 2020 5:01:05 GMT
Anna coming sun thru wed. Since her mother's on hospice now in her assisted living here, she and anibal can visit 1 at a time. She's staying in a hotel since she's bringing benji the dog. In the evenings I'll go over and we'll order in and gap in her room.
Air quality close enough to hazardous. Went shopping and I could feel the particulates in the air. Felt sickly and eyes were stinging when got home. Record 25 days in a row spare the air. Extended through Mon. Might as well extend it through Nov... no fresh air. Just ac or fan recycling room air. Hate that. Miss the nice cool evening breeze flowing in here.
|
|
